Wednesday, October 10, 2012

“what's up, doc?”

Good health. Let's be honest with ourselves we often take it for granted...until something slaps you in the face.

While I had been sensing for quite sometime that something wasn’t “right,” I didn’t think it was cancer. I thought I was pretty healthy – yes, I may need to exercise and eat better – but youth was on my side…or so I thought. It just goes to show you, things can happen to anyone…even when you least expect it.

When the Radiologist called me with my biopsy results, she explained that I needed to move very quickly. She told me to pick-up my pathology reports/images and referred me to a breast surgeon right away. From that moment, I knew I would need some type of surgery. I guess I just wasn’t expecting that a breast surgeon would be the first doctor I should see…but then again I had no idea what to expect.

Following the advice of the Radiologist and with the help of my family, I moved quickly to research breast surgeons and set-up appointments. Even though things were moving along swiftly, time seemed to be passing extremely slow. Hours felt like days. One day felt like weeks. Needless to say, I was anxious to get in front of a doctor to ask the infamous question, “What’s up, Doc?

You may know this but in case you don’t, I like to be organized. So again, in true “Kelly” fashion, I made sure I was appropriately prepared for my first doctor appointment. My list of questions was six pages typed, divided into categories and bullet pointed. I must have read over my list of questions fifty times and added to it by the minute. On the way to the doctor, I rehearsed my questions, just as I would a school speech. I suppose it was my way of having some sort of control of the situation.

When I walked into the doctor’s office and sat in the waiting room, I remained pretty calm. I was nervous but I had my game-face on. I was ready for go-time. Having all my questions ready and previously completing the extensive pages of health history, I felt prepared. My pulse, on the other hand, was racing.  

Sitting on the table, waiting for the doctor felt like eternity. I often find that waiting is sometimes the hardest part. I’m pretty sure I read all of the posters on the wall, counted the ceiling lights and continued to read my questions over and over again. Fortunately, my family came with me and distracted me even more. I needed anything to keep my mind from thinking about how much time was passing.

A knock at the door. This was it. Finally, it was my time to be seen. A caring smile greeted me and shook my hand ever so confidently. She followed with a heartfelt and sincere, “How are you?” That’s when I broke. I had been so strong but I felt like she could see through me. I thought about how hard it must be to see that look in a patient’s eyes...multiple times a day, let alone everyday.

She started by talking me through my specific breast cancer diagnosis and corresponding diagrams. Luckily, I had already briefed myself on everything but it helped to walk through it a second time. Part of me felt like I was back in high school sitting in my AP Biology class. She kindly answered my endless list of questions and made me feel like she had all the time I needed. It was so nice not to feel rushed. As she continued talking to me, everything started to feel very surreal. It was like an out of body experience…as if I was standing next to myself, watching and listening to what someone else was being told. Almost as though I was watching a movie of myself.

Part of the visit included a ultrasound and breast exam. I’m not going to lie, it wasn’t very comfortable. I tried to hold back the tears. The tumor had been tender to the touch and painful since the day I found it but it was even worse after the biopsy. The incision area was still healing and the swelling made the area feel much larger than before. Fortunately, she did not feel anything alarming other than the known tumor site. However, she said I would need further testing and imaging before moving forward.

Even though I do not have a family history of breast cancer, they still wanted to perform genetic testing to rule out any mutations. The primary reason for having the testing is for surgery implications. So at that first doctor appointment, we wasted no time and I was tested for BRCA1 and BRCA2. Mutations of these genes are linked to hereditary breast and ovarian cancer. Interestingly, only 5-10% of breast cancers in the United States are linked to an inherited genetic mutation.

As the appointment wrapped up, we discussed what the next steps were:
  • Breast MRI with and without contrast
  • Mammogram
  • Blood work
  • Appointment with Genetic Counselor  
  • Appointment with Fertility Specialist
  • Appointment with Oncologist
  • Follow-up Appointment with Breast Surgeon

So off I went to digest everything and to quickly set-up my next set of appointments. Even though I had a good feeling about the first breast surgeon I saw, it was important to seek out additional opinions to allow me to make the best decision moving forward. Thus, I worked that into my next steps as well. Needless to say, there were many appointments to come...all of which needed to be done in a short period of time.

Current Update: Weeks after testing, I received my BRCA1 and BRCA2 results. I’m happy to report that no mutation was found. Results of further genetic testing to come.

Bugs

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P.P.S. Check out my new section called
Song of the Week. This week's selection has a special meaning for me in many ways. Now it's time to share your song choice in the comment section below!

9 comments:

  1. Even when faced with something so stressful as this you are ten million times more organized than me! You are awesome! Love you Little!!

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  2. A song, huh? Well honestly the first song that popped into my head after reading this post is “I am Woman” by Peggy Lee. Granted it’s from the 60s and therefore includes a lot of “women’s duties” I always thought the song was a classic female empowerment song. Plus, Peggy Lee was a natural beauty, just like you :).

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  3. So glad that I can get your new posts by e-mail. Love you for being brave enough to share this with everyone. Love that the doctor listened to you and that you felt comfortable enough to share how you were feeling with her. Love your song of the week, it makes me think of the olympics because they always played it with the women's gymnastics team. Now I'll think of it with another strong lady - you! XOXOXO

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  4. Have you heard "Believe" by Lenny Kravitz?
    It is one of my "go to" songs for good times, bad times or anytime really.

    Your strength mentally, emotionally and physically is beyond anything I can comprehend. You have a sensational spirit that shines thru in your writing. I believe You will really help others thru difficult times when they hear or read your story. I can't help but want to be a better person every time I think of you.. any time I want to complain of something Like a headache, or being tired....for example ,and then I think of what you and those close to you are experiencing and how strong you stay! I'm so very proud of you! It's a true honor to be "aunt" j.

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  5. Hey Kelly, twelve years ago I bought a CD by Patty Griffin "Impossible Dream" just for this one song that made me think of my daughter. The song is "When it don't come easy" Sometimes life is so damn hard but having love can get you through it. I send you love tonight as I'm playing that CD right now. You and your family are in my heart. Lori Burge

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  6. Kells, you inspire me to do more in my life. Your drive, passion and determination is contagious. I wish I could be a fly on the wall when you go through this process (wait, hopefully that didn't sound creepy haha). Watching you in action would be an amazing experience. You could give strength to the weak and sight to the blind, Kelly. Keep it up. :)

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  7. hi kelly bugden! (full name, always!) i hope you had a good day! i love hearing that you bring a pen and notebook to appointments... i've used the notes in my iphone before haha! and i'm glad you felt heard by your first doctor... it must be tough to be in their shoes, and doing their job well is so much more than just medicine. i have a bunch of doctors in my family and i hope they treat their patients well... judging by how many families approach my obgyn uncle at the mall, he has happy customers haha! anyway, do you watch the show parenthood? it's on nbc tuesday nights (just finished watching and had to write you!) it's about this big family and their relationships, lauren graham from gilmore girls is in it so you know it must be good :) so one of the parents has been diagnosed with breast cancer too. i think the show is in its third season and i never really watched loyally but got kinda hooked when i started paying for hulu and could watch it all. the way the show is shot it really lets the viewer feel what's going on in doctors appointments, trying to go about daily things with something so big happening at the same time. it's been very eye opening, and that much more meaningful, for me to watch knowing that you are fighting a similar fight too. i know some people think TV is silly but it's in these moments that i love what we do! we get to let people connect! even if its with tough stuff. maybe you don't want to watch it now while you're going through it, but know i'm watching and cheering you on and trying to learn more about the fight you are going through even if it is just through a TV show. Kel, keep up your head up and keep on keepin' on! i'm here if you ever need anything and my thoughts and prayers are with you and your family. As for a song, i'm suggesting "hold on" by the alabama shakes, i just got to see them in austin! replace "brittany" with "kelly" :)

    ReplyDelete
  8. Im impressed. Youre truly well informed and very intelligent. You wrote something that people could understand and made the subject intriguing for everyone. Im saving this for future use.

    Vivian
    Marks Web
    www.imarksweb.net

    ReplyDelete
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